Conectar
Commentary on: Spurlock EJ, Pickler RH. Birth Experience Among Black Women in the United States: A Qualitative Meta-Synthesis. J Midwifery Womens Health. 2024; https://doi.org/10.1111/jmwh.13628
Implications for practice and research There is a need to understand and measure how black women can feel known and seen within their healthcare relationships, to improve their experiences of maternity care. Research around ‘seeing and knowing’ the identities of black women and mothers, from their own perspectives, could inform midwives and obstetricians to achieve racially concordant care.
The WHO recommendations around intrapartum care aim that a positive experience of childbirth should be the outcome of labour for each woman.
There are estimated to be 3.4 million patients in the UK living after a diagnosis of cancer. We know very little about their quality of life or healthcare usage. Patient-reported outcome measures (PROMs) are tools which help to translate a patient’s quality of life into measurable categories, but how to do this at scale remains underexplored. The study employs a randomised design to assess different engagement strategies for optimising participation, data linkage and questionnaire completion in Northwest London and then nationally, with appropriate research approvals.
We have designed and implemented an online, patient-completed, randomised observational trial. We will pilot it in Northwest London before national roll-out, using initially the General Practice (GP) record of a cancer diagnosis and then exploring the use of social media. The primary objective is to explore the feasibility of recruiting participants via self-identification or contact from the primary care research network and obtaining consent to link participants’ PROMs responses to their cancer registry records. Data collection occurs through a secure platform, with participants directly responsible for data entry. There is no formal target sample size because this is a feasibility study, and we want to explore how many patients we can recruit. Analyses will be conducted using descriptive statistics, repeated measures multilevel modelling and machine learning techniques. If a substantial difference in responses between randomisation arms is detected, ineffective strategies will be removed. If no clear difference is observed, recruitment will continue with periodic reviews based on response rates and data completeness.
The Study Coordination Centre has obtained approval from the London—Surrey Research Ethics Committee and Health Research Authority. We will publish and disseminate the results in local, national and international meetings, in peer-reviewed journals, on social media and on websites.
It has been registered under ‘Investigating Digital Outcomes for Cancer Survivors in the Community’ (NCT06095024).
NCT06095024: Investigating Digital Outcomes for Cancer Survivors in the Community.
Commentary on: Mehrtash H, Stein K, Barreix M, Bonet M, Bohren MA, Tuncalp Ö. Measuring women’s experiences during antenatal care (ANC): scoping review of measurement tools. Reprod. Health 2023; 20(1):150.
Outcome measures of maternity care are limited in scope to evaluating experiences of intrapartum care, and therefore may not capture women’s experiences of care during the entire antenatal period. Research that explores aspects of antenatal care that are important to maternity service users themselves would be beneficial to inform the development of instruments and measures to capture a broader range of antenatal care experiences.
Antenatal care (ANC) is the care given to women by healthcare professionals throughout pregnancy to childbirth, which should commence in early pregnancy. This is the first opportunity for most mothers to encounter their healthcare,
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