Data Trauma: A Concept Analysis

Today's healthcare landscape is becoming increasingly data-centric, with artificial intelligence and advanced computer algorithms becoming inextricably embedded in patient care. Although these technologies promise to make care more efficient and effective, they heighten the risk for unintended consequences. Using Walker and Avant's framework for concept analysis, we propose and explicate the emerging concept of iatrogenic data trauma, or ways in which the collection, storage, and use of sensitive and potentially stigmatizing patient data can cause harm. We conducted a careful and exhaustive review of traditional academic publications, as well as nontraditional digital sources to generate a rich and intersectional corpus of information pertaining to data justice, digital rights, and potential risks associated with the “datafication” of individuals. Using evidence synthesis and practical examples, we discuss how flawed data processes in healthcare settings can lead to data trauma among patients and explore how its presence can perpetuate health disparities, marginalization, loss of privacy, and breach of trust in patient-provider relationships. We discuss how this phenomenon arises and manifests across the healthcare continuum and is an important issue for professionals in multiple disciplines. We conclude by suggesting future opportunities for research through a trauma-informed lens.

Ambulatory Care Coordination Data Gathering and Use

Care coordination is a crucial component of healthcare systems. However, little is known about data needs and uses in ambulatory care coordination practice. Therefore, the purpose of this study was to identify information gathered and used to support care coordination in ambulatory settings. Survey respondents (33) provided their demographics and practice patterns, including use of electronic health records, as well as data gathered and used. Most of the respondents were nurses, and they described varying practice settings and patterns. Although most described at least partial use of electronic health records, two respondents described paper documentation systems. More than 25% of respondents gathered and used most of the 72 data elements, with collection and use often occurring in multiple locations and contexts. This early study demonstrates significant heterogeneity in ambulatory care coordination data usage. Additional research is necessary to identify common data elements to support knowledge development in the context of a learning health system.